BD4BO toolkit published

A practical toolkit on the identification, selection and measurement of outcomes has just been published by the DO->IT project – […]

BD4BO film launched

Watch this short film if you’d like a quick summary of BD4BO and the transformational potential of Big Data for […]

ROADMAP partners hold interactive feedback sessions with the European Working Group of People With Dementia

On 26 July, ROADMAP partners held two interactive feedback sessions with the members of the European Working Group of People With […]

Save the date: 27/08 BigData@Heart session – ESC Congress 2018 Munich

ESC Congress 2018 – Munich, Germany – Digital Health Stage ‑ Exhibition 3 – 27th August (Monday), 14:30 -16:00 CEST read more

Raj Long from the Gates Foundation comments on the value of HTA/regulatory involvement

The ROADMAP expert advisory group (EXAG) has met on four occasions and discussions have covered a number of topics including […]

ROADMAP development update

ROADMAP’s activities are progressing well and this article was drafted in collaboration with all ROADMAP Work Packages (WPs) to give […]

An interview with Angela Wood on statistical methodology

An interview with Angela Wood, Senior Lecturer in Biostatistics at the University of Cambridge, and WP 5 co-lead and Case Study […]

LSE-ICL Patient Engagement Event, London, 24 April 2018

The London School of Economics Department of Health Policy and Imperial College London Institute of Global Health Innovation host event […]

HARMONY presenting at IMI breakfast debate hosted by MEP Soledad Cabezon Ruiz

The event, hosted by Soledad Cabezón Ruiz MEP, will feature a discussion with Members of the European Parliament and policy […]

HARMONY presenting at IMI breakfast debate at the European Parliament, hosted by MEP Soledad Cabezon Ruiz

The event, hosted by Soledad Cabezón Ruiz MEP, will feature a discussion with Members of the European Parliament and policy […]

A Health Technology Assessment perspective on the significance of real-world evidence

Today’s article is an interview with Dr Amr Makady. He is a pharmacist by training with an interest in pharmaceutical […]

Successful HARMONY participation in 23rd Congress of the European Hematology Association

Big Data will have an impact on health and in particular on the development of new drugs and therapies for […]

Successful HARMONY participation in 23rd Congress of the European Hematology Association

Big Data will have an impact on health and in particular on the development of new drugs and therapies for […]

Improving the treatment of Hematologic Malignancies with Big Data analytics

The collaborative endeavor of European hematologists, scientists, drug companies, and patient organizations called ‘HARMONY’ has launched an innovative big data […]

HARMONY Progress update: Progress Update: Innovative big data platform launched; patient involvement; AML and CLL projects started; and more

The collaborative endeavor of European hematologists, scientists, drug companies, and patient organizations called ‘HARMONY’ has launched an innovative big data […]

Health Economics team publishes third review protocol on economic models across the spectrum of AD and dementia

Since the beginning of 2018, ROADMAP’s Health Economics team published three protocols on the methods for systematic literature reviews they […]

BigData@Heart in Horizon article

Complex diseases get the big data treatment read more

10th Research Conference of the Catalan Health Institute discusses challenges in applying big data to improve health research

On 7 June 2018, the 10th Research Conference of the Catalan Health Institute and the 11th Research Conference of the Primary Care […]

Future Data Open Foresight published report called the Future of Patient Data

The Future of Patient Data report is based on insights from multiple experts through discussions around the world. The report […]

Welcome to the fifth issue of the ROADMAP newsletter!

This fifth newsletter provides you with updates on the project’s current progress, insights into the importance of real-world evidence from […]

BD4BO Newsletter Issue 2 published

You can read our latest newsletter: BD4BO newsletter

Interview with Project Coordinator John Gallacher from the University of Oxford

The ROADMAP communications team carried out an interview with the Project Coordinator, Prof. John Gallacher from the University of Oxford. […]

Using #RWD to fill the knowledge gap

Carlos Moedas, Commissioner on Research, Science and Innovation of the European Commission tweeted: “Using #RWD to fill the knowledge gap: clinical trials & […]

How big data can help Prostate Cancer patients

Innovative Medicines Initiative approves € 12 million public-private research project for improved care of prostate cancer patients. read more

Read the article in Circulation Research: Omics, Big Data, and Precision Medicine in Cardiovascular Sciences

We tweeted about this article publishing in Circular Research, April 27, 2018, Volume 122, Issue 9: How do our individual genomes and life […]

Read the PLOS article about a FAIR guide for data providers to maximize sharing of human genomic data

We tweeted about this article published in PLOS: It is generally acknowledged that, for reproducibility and progress of human genomic […]

HARMONY: Read the PLOS article about a FAIR guide for data providers to maximize sharing of human genomic data

It is generally acknowledged that, for reproducibility and progress of human genomic research, data sharing is critical. For every sharing […]

Read the article in Circulation Research: Omics, Big Data, and Precision Medicine in Cardiovascular Sciences

How do our individual genomes and life histories influence our well-being, risk for diseases, and responses to medical treatments? This […]

HARMONY: Let’s discuss the impact big data will have on health and in particular on hematology!

Meet HARMONY at the 23rd Annual Congress of the European Hematology Association in Stockholm from June 14-17, 2018. read more

HARMONY: IMI: 10 years of transforming medical research

The HARMONY Alliance is funded through the Innovative Medicines Initiative (IMI). Mission of IMI is to improve health by speeding up […]

HARMONY: Using Real World Data to fill the knowledge gap

Real-world data (RWD) is health-related data derived from a diverse human population in real life settings. RWD can be medical […]

ROADMAP: Recent progress report

There is a lot happening across the ROADMAP project and this article was drafted in collaboration with all ROADMAP Work […]

Health Economics team publishes two protocols on systematic literature reviews on economic models in Alzheimer’s disease

Since the beginning of 2018, ROADMAP’s Health Economics team published two of three protocols on the methods for systematic literature […]

ROADMAP: Interview with Antonella Santuccione Chadha – A regulatory perspective on the importance of real-world evidence

Today’s post is an interview with Dr Antonella Santuccione Chadha. She is a medical doctor with a wealth of experience […]

ROADMAP: Interview with Pieter Jelle Visser from VU University Medical Center

Today we talk to Pieter Jelle Visser from Maastricht University and VU University medical Center Amsterdam. He is a clinical epidemiologist […]

HARMONY: 6 Important questions about Big Data in Health

Big Data has been attributed as having “transformative potential” in healthcare systems, with benefits across the entire pathway of care […]

Read the interview with HARMONY Partners Jan Geissler, EUPATI/Leukanet and Matthias Gottwald, Bayer about the empowerment of patients

IMI, the Innovative Medicines Initiative, interviewed the project coordinators of EUPATI: Game-changer in the empowerment of patients’. read more

HARMONY: Listen to: Elvira Mora-Castera, HARMONY Partner, HULAFE

@HARMONY Talks: Partners, Work Package Leaders and Leaders of the HM Disease Groups are sharing their views and experiences. read […]

How to Use Cardiovascular Data to Develop an Open Access Informatics Platform? – An interview with Richard Dobson and James Teo

BigData&Heart: Richard Dobson, Professor in Medical Informatics and WP3 co-lead BigData@Heart, University College London and James Teo, Consultant Neurologist, King’s College Hospital […]

ROADMAP: Sign up for the IMI-EMIF symposium on April 18th in Brussels

  IMI-EMIF would like to invite you to its public symposium: ‘Liberating Evidence from European Health Data – the Achievements and Challenges […]

ROADMAP workshop Modelling the economic value of Alzheimer’s disease interventions: How far have we come, and what next?

On Wednesday 14th February 2018 the Health Economics team from Work Package 5 convened a workshop in Paris to coincide […]

BD4BO Newsletter

Our latest newsletter is out now and you can read it by clicking this post.

HARMONY: Listen to: Michel van Speybroeck, JPNV-JANSSEN, HARMONY Partner, WP4 Leader, about the data platform

@HARMONY Talks: Partners, Work Package Leaders and Leaders of the HM Disease Groups are sharing their views and experiences. read […]

ROADMAP updates on recent and ongoing activities

There is a lot happening across the ROADMAP project and this article was drafted in collaboration with all ROADMAP Work […]

DATA IN QUESTION – survey on ethical, legal and societal challenges in biobank-based research – YOUR PARTICIPATION IS NEEDED

  The survey consists of 25 questions on some of the challenges of obtaining and sharing biological samples and data […]

ROADMAP: Resource utilisation and costs in predementia and dementia: a systematic review protocol

Introduction Dementia is the fastest growing major cause of disability globally with a mounting social and financial impact for patients and […]

HARMONY presented at the Fifth Annual Life Science R&D Data Intelligence Leaders Forum

HARMONY Partner, WP2/WP7 Co-leader Aliki Taylor from Takeda gave a presentation at this meeting on 24th January on “EU Big […]

HARMONY: EU’s Health Commissioner Andriukaitis: Big data has ‘enormous’ potential to optimize healthcare

The healthcare sector generates massive volumes of data, which has “immense potential” to protect and promote health and to improve […]

ROADMAP: ROADMAP launches survey to identify important outcomes in dementia

On 29 January, the ROADMAP project launched their recently finalised surveys to obtain views on the importance of different aspects […]

HARMONY: HARMONY in the new open access journal of the European Hematology Association: HEMASPHERE

HemaSphere is the new journal of the European Hematology Association (EHA), and dedicated to support hematology patient care, research and education worldwide. The journal will […]

HARMONY: Outlook for 2018!

We are looking forward to another exciting and productive year. Read the milestones and plans for the 8 HARMONY Work […]

HARMONY: ELN, HARMONY Partner, about advancing a field by building consortia

Building consortia sounds straight forward and simple since the advantage of consortia for the advancements particularly of rare diseases seems […]

ROADMAP: BD4BO meets with sister projects ROADMAP, HARMONY and BigData@Heart to discuss communications and outreach activities

On 16 January, the Innovative Medicines Initiative (IMI) projects ROADMAP (focussing on Alzheimer’s disease – AD), Harmony (Hematology) and BigData@Heart (Cardiovascular) met with […]

ROADMAP: Interview with Johan van der Lei from Erasmus University

Prof. Johan van der Lei is the Head of the Department of Medical Informatics at Erasmus University. The Department has […]

HARMONY: What is a health outcome? View and listen to the ICHOM video.

Outcomes are the results people care about most when seeking treatment, including functional improvement and the ability to live normal, […]

ROADMAP: Review of past regulatory and health technology assessments of Alzheimer’s disease medicines

Today’s post is by Marieke Dekker (Scientific Researcher at the Medicines Evaluation Board, CBG-MEB) In Roadmap Work Package 6, regulatory […]

ROADMAP progress report

As we reached the end of 2017 and start 2018, the ROADMAP communication team is happy to provide a brief […]

HARMONY Networking at ASH2017, the 59th Annual Meeting and Exposition of American Society of Hematology

At ASH2017 from 9 – 12 December in Atlanta, USA, hematology professionals from around the world were able to learn about […]

HARMONY: Connecting at the 1st European Alliance for Personalised Medicine Congress 2017

HARMONY organized an interactive session on November 28 at the 1st European Alliance for Personalised Medicine Congress 2017 titled “Personalising […]

HARMONY: Summarizing the HARMONY Workshop on the Definition of Meaningful Outcomes for HMs

Approximately 50 European leaders working in the field hematological malignancy gathered at the London Takeda offices on 23 -24 November […]

ROADMAP consultation with the European Working Group of People with Dementia

ROADMAP is a private-public partnership of leading institutions and companies with an interest in improving the situation of people with […]

ROADMAP updates Alzheimer Associations at Alzheimer Europe Academy

On 5 and 6 December 2017, Alzheimer Europe (AE) hosted its third annual Alzheimer’s Association Academy in Brussels, Belgium. The […]

ROADMAP: Communication team reaches milestone

At the beginning of November, the communication team (WP7) has submitted their fourth deliverable to the Innovative Medicines Initiative (IMI) […]

HARMONY at the 59th Annual Meeting of the American Society of Hematology in Atlanta, USA.

HARMONY is attending the 59th Annual Meeting of the American Society of Hematology in Atlanta, USA, to be held from 9 to […]

HARMONY Work Packages 2 & 6 Leadership in action in London, during Workshop: Meaningful Outcomes for HMs

Today and tomorrow the Leadership of HARMONY Work Packages 2 & 6 are organizing a workshop on the definition of […]

BD4BO meets with sister projects ROADMAP, HARMONY and BigData@Heart in London

On 15 November, the Innovative Medicines Initiative (IMI) projects; ROADMAP (focussing on Alzheimer’s disease – AD), Harmony (Hematology) and BigData@Heart […]

New IMI brochure ‘Carry the torch’ highlighting impacts of IMI projects

The Innovative Medicines Initiative (IMI) is working to improve health by speeding up the development of, and patient access to, innovative […]

Harmony: First year achievements

The HARMONY Alliance is an unparalleled medicine offensive to battle blood cancers by using Big Data analyses. One of the […]

Meet Roadmap at Alzheimer’s Association Academy

The ROADMAP project will be presented at a meeting in Bruxelles on 5-6 December 2017. The invitation only meeting is […]

Big Data@Heart: €19M IMI project aims to bring cardiovascular health into the genomics era

The genomics revolution has brought personalised medicine to cancer and rare diseases, but cardiovascular care is stuck in the past. […]

Harmony: Goals and Objectives

HARMONY Alliance Partners and Associated Members were filmed at the 2nd HARMONY General Assembly on 23 and 24 October 2017 […]

Harmony: About the US initiative: Cancer Moonshot

The Cancer Moonshot is a key initiative of the NHI National Cancer Institute of the United States of America and aims to […]

Big Data for Better Outcomes in Healthcare: a public lecture with Dr Jem Rashbass

9 October 2017, Technical University of Berlin As part of the DO->IT General Assembly, Dr Jem Rashbass, National Director of […]

We have just held our first DO->IT General Assembly

Over 75 members of the Big Data for Better Outcomes (BD4BO) programme Coordination and Support Action project known as ‘DO->IT’, […]

Press Release HARMONY

Progress in Using Big Data Technology to Achieve Better Outcomes for Patients with Blood Cancers   Berlin, 26 October 2017  […]

IMI Stakeholder Forum 2017

  The IMI Stakeholder Forum 2017 took place on Wednesday 18 and Thursday 19 October 2017 at the Hotel Crowne Plaza […]

First ROADMAP face to face Advisory Group meeting

On 18 October, Barcelona (Spain), WP6 – which focuses on regulatory and Health Technology Assessment (HTA) engagement – organised the […]

ROADMAP participates in cross-IMI Disease Modelling Workshop

On 16-18 October, the European Prevention of Alzheimer’s dementia (EPAD) project organised its first IMI-AD Platform Disease Modelling Workshop in […]

ROADMAP holds 4th General Assembly in Barcelona

On 16 and 17 October, the partners of the ROADMAP project met for the 4th General Assembly Meeting in Barcelona, Spain. The […]

Engaging with patient organisations within IMI consortia

ROADMAP partners Alzheimer Europe and Lilly joined forces recently at the AE annual conference in Berlin on 2nd – 4th October, at […]

What value has being involved in research?

Today we talk with Chris Roberts and his wife Jayne about their involvement in the ROADMAP project. On 4 and […]

The Pathway to Patient Data Ownership and Better Health

Digital health data are rapidly expanding to include patient-reported outcomes, patient-generated health data, and social determinants of health. Measurements collected […]

Interview with Mia Nelson from the University of Edinburgh

Today we talk with Mia about her involvement in the ROADMAP project. Mia is a post-doctoral research fellow and is […]

First BigData@Heart research paper published

The first BigData@Heart research paper by Harry Hemingway and colleagues entitled “Big data from electronic health records for early and late […]

ROADMAP progress update

The ROADMAP team has been busy and on the ROADMAP website you can get a brief overview and update of […]

HARMONY Partner GMV explains HARMONY goals and objectives in largest Spanish newspaper

The article in the Spanish newspaper El Mundo about the HARMONY Alliance and the role of its partner GMV was further […]

HARMONY Interactive session at the 1st European Alliance for Personalised Medicine Congress.

Belfast, Ireland 27/11/2017 Let’s connect at the 1st European Alliance for Personalised Medicine Congress (EAPM2017) from 27-30 November 2017, The […]

BD4BO public keynote lecture and panel discussion

BD4BO public keynote lecture and panel discussion – General Assembly, Berlin: Dr Jem Rashbass Public Health England Technical University, Berlin […]

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