HARMONY at ASH2018: the 60th Annual Meeting of the American Society for Hematology

We are organizing a session at the 60th Annual meeting of the American Society for Hematology. read more

ROADMAP’s publication repository

The ROADMAP Consortium has already published a number of peer-reviewed publications and is working on a range of further papers […]

The ROADMAP journey featured at Alzheimer Europe’s Conference

On 30 and 31 October, ROADMAPs journey during the initial Phase 1 of the project was featured at Alzheimer Europe’s […]

Costs and quality of life across the spectrum of Alzheimer’s disease: a systematic review of the evidence

The Health Economic Research Team is nearing completion of two important pieces of work for ROADMAP Work Package 5, which […]

HARMONY young talent presenting at the IMI 10th Anniversary Scientific Symposium

For the last 10 years, over 100 projects of the Innovative Medicines Initiative (IMI) have been carrying out amazing work to speed […]

Prof Natacha Bolaños, Lymphoma Coalition Europe presenting at BD4BO “In Data we trust” Symposium

The Innovative Medicines Initiative’s Big Data for Better Outcomes Programme (BD4BO) organizes a symposium “In data we trust: towards outcomes-based […]

HARMONY partners attending SEHH, the 60th National Congress of the Spanish Society of Hematology and Hemotherapy

We are living a decisive moment for the hematology specialty, marked by precision therapy­­­­, techniques of massive molecular diagnosis, promising […]

Medical University of Vienna representing HARMONY at Austrian Platform for Personalized Medicine, ÖPPM

Based on the abstract entitled “IMI HARMONY – Big Data in treating Hematologic Malignancies”, HARMONY has been selected for an ÖPPM […]

BD4BO symposium “In Data We Trust: Towards outcomes-based healthcare in Europe” will take place in Brussels on 11th October 2018.

The Innovative Medicines Initiative’s Big Data for Better Outcomes Programme holds the symposium “In data we trust: towards outcomes-based healthcare […]

IMI-2 ROADMAP initiative moves into end of Phase 1 as it holds General Assembly Meeting in Madrid

On 8 and 9 October (Madrid, Spain), the Real World Outcomes across the Alzheimer’s disease spectrum for better care: Multi-modal […]

BD4BO session in Gastein

At the European Health Forum Gastein on 5th October 2018, BD4BO held a session entitled ‘The value of evidence in […]

HARMONY Alliance Partners and Associated Members interact at the 3rd General Assembly

Our Partners and recently joined Associated Members came together at the HARMONY General Assembly 2018, organized on 4 and 5 […]

Save the date: 29 October 2018 – WP7 webinar on data privacy

On the 29th October 2018 (12:00-13:00 CET), WP7 of BigData@Heart will hold a public webinar on data privacy. Topics that will be discussed […]

The value of an Expert Advisory Group within the ROADMAP project

An online survey of ROADMAP Expert Advisory Group (EXAG) members and members of the Consortium was undertaken by Work Package […]

ROADMAP updates on recent progress

As the end of ROADMAP Phase 1 approaches, the project teams have been busy over recent months. Here we report […]

The ROADMAP journey featured at Alzheimer Europe’s Conference #28AEC

On 30 and 31 October, ROADMAPs journey during the initial Phase 1 of the project will be featured at Alzheimer […]

BD4BO organizes workshop at the European Health Forum Gastein 2018

in Bad Hofgastein, Austria. BD4BO is organizing a workshop about the value of evidence in outcomes-bases healthcare on October 5, 12:00 […]

BD4BO organizes workshop at the European Health Forum Gastein 2018

The European Health Forum Gastein (EHFG) is an independent, non-partisan organisation, founded in 1998 as a European health policy conference. […]

UNITO presents HARMONY poster at the 10th IMI Anniversary Scientific Symposium

IMI approaches its 10th anniversary and is organizing its 1st Scientific Symposium on 22 and 23 October 2018 in Brussels. Since 2008, […]

Interview with Prof. dr. JJM (Hans) van Delden: governance, ethics and legal aspects in the work of BigData@Heart

Professor Van Delden is the academic lead of work package 7, concerned with Governance, ethical and legal aspects of the […]

Involving people with dementia in research – lessons from ROADMAPs Outcome Definition team

Today’s post is by Mia Nelson from the Usher Institute of Population Health Sciences and Informatics (University of Edinburgh, UK). […]

IMI Paper highlights importance of global data standards

The value of global data standards in medical research is the focus of a new comment paper, co-authored by IMI […]

Watch the video of Jan Geissler of HARMONY Partner LeukaNet, explaining the potential of HARMONY for patients

@HARMONY-Talks: Sharing our new video interviews with you, starting with Jan Geissler of Leukanet and Leader of Work Package 6: Payers/Providers/HTAs, […]

Listen to the interview with Prof Ghia, European Research Initiative on CLL, explaining what the CLL component in HARMONY is about

@HARMONY-Talks: Sharing our new video interviews with you, starting with Prof Ghia, European Research Initiative on CLL, ERIC. Prof Ghia is […]

“It’s about what matters the most to patients” – an interview with Zofia Das-Gupta on Patient Reported Outcomes

Zofia Das-Gupta is a Standardisation Project Leader, based in the London office for the International Consortium for Health Outcomes Measurement […]

HARMONY Partners Leukanet and EORTC participating in ECCO2018 European Cancer Summit

The ECCO 2018 European Cancer Summit, was held on 7-9 September 2018 in Vienna, Austria bringing worldwide leaders from the […]

Listen to the interview with Prof Lars Bullinger, Charite University Berlin

@HARMONY-Talks: We are happy to share our new video interviews with you, starting with Prof dr Lars Bullinger, Charite University […]

Listen to the interview with Yann Guillevic, Celgene HARMONY Partner

@HARMONY-Talks: We are happy to share our new video interviews with you, starting with Yann Guilevic, Celgene, HARMONY Partner. read […]

HARMONY Partner NICE presenting poster at G-I-N Conference 2018

Why we do what we do: the purpose and impact of guidelines” is the title of the G-I-N Conference 2018. GIN […]

Understanding the implications of an integrated data environment

The ROADMAP communications team carried out an interview with the leaders of Work Package 8 (WP8), Andrew Turner from the […]

Find HARMONY in the EHA23 digital congress report

In case you missed it before your summer break, HARMONY Partner European Hematology Association, EHA  published the report of the […]

Webinar Invitation – Leapfrogging Legacy Processes for Data Driven Decision Making

“Leapfrogging Legacy Processes for Data Driven Decision Making” 17 September 2018, 15.00-16.00 CET read more

Towards outcomes-based healthcare: the EFPIA vision

What is outcomes-based healthcare and how can we achieve it in Europe? Thomas Allvin, executive director of strategy and healthcare […]

News Towards outcomes-based healthcare: the EFPIA vision

What is outcomes-based healthcare and how can we achieve it in Europe? Thomas Allvin, executive director of strategy and healthcare […]

ROADMAP participates in “Women and Dementia” session at Alzheimer’s Disease International Conference

On 27 July, Claire Tochel from the ROADMAP Consortium participated in a parallel session dedicated to research on women and […]

Listen to the interview with Prof Anthony Moorman, Newcastle University, HARMONY Partner

@HARMONY-Talks: This is an interview with Prof Anthony Moorman, Newcastle University, HARMONY Partner. read more

Listen to the interview with Prof Natacha Bolaños of the Lymphoma Coalition, HARMONY Patient Cluster

We are happy to share our new video interviews with you starting with Prof Natacha Bolaños, Lymphoma Coalition, who is part […]

Interview with the Outcome Definition team from the Usher Institute

The ROADMAP communications team carried out an interview with members of the Outcome Definition team (WP2), Mia Nelson, Claire Tochel, […]

Outcome Definition team submits combined report

At the end of July, ROADMAP’s Outcome Definition team submitted a combined report of two important Deliverables. The D2.3 Stakeholder […]

Public webinar on outcomes standardisation

On 15 May, Claire Tochel from the University of Edinburgh presented the work of our Outcome Definition team (WP2) during […]

Watch this video explaining about big data in health by BD4BO

As an IMI project, HARMONY is also part of BD4BO, Big Data for Better Outcomes. Big Data for Better Outcomes is […]

BD4BO toolkit published

A practical toolkit on the identification, selection and measurement of outcomes has just been published by the DO->IT project – […]

Big Data For Better Outcomes film launched

BD4BO recenlty launched a film with a brief summary of BD4BO and the transformational potential of Big Data for the benefit […]

BD4BO film launched

Watch this short film if you’d like a quick summary of BD4BO and the transformational potential of Big Data for […]

ROADMAP partners hold interactive feedback sessions with the European Working Group of People With Dementia

On 26 July, ROADMAP partners held two interactive feedback sessions with the members of the European Working Group of People With […]

Save the date: 27/08 BigData@Heart session – ESC Congress 2018 Munich

ESC Congress 2018 – Munich, Germany – Digital Health Stage ‑ Exhibition 3 – 27th August (Monday), 14:30 -16:00 CEST read more

Raj Long from the Gates Foundation comments on the value of HTA/regulatory involvement

The ROADMAP expert advisory group (EXAG) has met on four occasions and discussions have covered a number of topics including […]

ROADMAP development update

ROADMAP’s activities are progressing well and this article was drafted in collaboration with all ROADMAP Work Packages (WPs) to give […]

An interview with Angela Wood on statistical methodology

An interview with Angela Wood, Senior Lecturer in Biostatistics at the University of Cambridge, and WP 5 co-lead and Case Study […]

LSE-ICL Patient Engagement Event, London, 24 April 2018

The London School of Economics Department of Health Policy and Imperial College London Institute of Global Health Innovation host event […]

HARMONY presenting at IMI breakfast debate hosted by MEP Soledad Cabezon Ruiz

The event, hosted by Soledad Cabezón Ruiz MEP, will feature a discussion with Members of the European Parliament and policy […]

HARMONY presenting at IMI breakfast debate at the European Parliament, hosted by MEP Soledad Cabezon Ruiz

The event, hosted by Soledad Cabezón Ruiz MEP, will feature a discussion with Members of the European Parliament and policy […]

A Health Technology Assessment perspective on the significance of real-world evidence

Today’s article is an interview with Dr Amr Makady. He is a pharmacist by training with an interest in pharmaceutical […]

Successful HARMONY participation in 23rd Congress of the European Hematology Association

Big Data will have an impact on health and in particular on the development of new drugs and therapies for […]

Successful HARMONY participation in 23rd Congress of the European Hematology Association

Big Data will have an impact on health and in particular on the development of new drugs and therapies for […]

Improving the treatment of Hematologic Malignancies with Big Data analytics

The collaborative endeavor of European hematologists, scientists, drug companies, and patient organizations called ‘HARMONY’ has launched an innovative big data […]

HARMONY Progress update: Progress Update: Innovative big data platform launched; patient involvement; AML and CLL projects started; and more

The collaborative endeavor of European hematologists, scientists, drug companies, and patient organizations called ‘HARMONY’ has launched an innovative big data […]

Health Economics team publishes third review protocol on economic models across the spectrum of AD and dementia

Since the beginning of 2018, ROADMAP’s Health Economics team published three protocols on the methods for systematic literature reviews they […]

BigData@Heart in Horizon article

Complex diseases get the big data treatment read more

10th Research Conference of the Catalan Health Institute discusses challenges in applying big data to improve health research

On 7 June 2018, the 10th Research Conference of the Catalan Health Institute and the 11th Research Conference of the Primary Care […]

Future Data Open Foresight published report called the Future of Patient Data

The Future of Patient Data report is based on insights from multiple experts through discussions around the world. The report […]

Welcome to the fifth issue of the ROADMAP newsletter!

This fifth newsletter provides you with updates on the project’s current progress, insights into the importance of real-world evidence from […]

BD4BO Newsletter Issue 2 published

You can read our latest newsletter: BD4BO newsletter

We need you – Patient involvement is vital to the success of PIONEER

A critical requirement of the PIONEER project is to agree on and prioritise the most important questions in Prostate cancer […]

Interview with Project Coordinator John Gallacher from the University of Oxford

The ROADMAP communications team carried out an interview with the Project Coordinator, Prof. John Gallacher from the University of Oxford. […]

Using #RWD to fill the knowledge gap

Carlos Moedas, Commissioner on Research, Science and Innovation of the European Commission tweeted: “Using #RWD to fill the knowledge gap: clinical trials & […]

How big data can help Prostate Cancer patients

Innovative Medicines Initiative approves € 12 million public-private research project for improved care of prostate cancer patients. read more

Read the article in Circulation Research: Omics, Big Data, and Precision Medicine in Cardiovascular Sciences

We tweeted about this article publishing in Circular Research, April 27, 2018, Volume 122, Issue 9: How do our individual genomes and life […]

Read the PLOS article about a FAIR guide for data providers to maximize sharing of human genomic data

We tweeted about this article published in PLOS: It is generally acknowledged that, for reproducibility and progress of human genomic […]

HARMONY: Read the PLOS article about a FAIR guide for data providers to maximize sharing of human genomic data

It is generally acknowledged that, for reproducibility and progress of human genomic research, data sharing is critical. For every sharing […]

Read the article in Circulation Research: Omics, Big Data, and Precision Medicine in Cardiovascular Sciences

How do our individual genomes and life histories influence our well-being, risk for diseases, and responses to medical treatments? This […]

HARMONY: Let’s discuss the impact big data will have on health and in particular on hematology!

Meet HARMONY at the 23rd Annual Congress of the European Hematology Association in Stockholm from June 14-17, 2018. read more

HARMONY: IMI: 10 years of transforming medical research

The HARMONY Alliance is funded through the Innovative Medicines Initiative (IMI). Mission of IMI is to improve health by speeding up […]

HARMONY: Using Real World Data to fill the knowledge gap

Real-world data (RWD) is health-related data derived from a diverse human population in real life settings. RWD can be medical […]

ROADMAP: Recent progress report

There is a lot happening across the ROADMAP project and this article was drafted in collaboration with all ROADMAP Work […]

Health Economics team publishes two protocols on systematic literature reviews on economic models in Alzheimer’s disease

Since the beginning of 2018, ROADMAP’s Health Economics team published two of three protocols on the methods for systematic literature […]

ROADMAP: Interview with Antonella Santuccione Chadha – A regulatory perspective on the importance of real-world evidence

Today’s post is an interview with Dr Antonella Santuccione Chadha. She is a medical doctor with a wealth of experience […]

ROADMAP: Interview with Pieter Jelle Visser from VU University Medical Center

Today we talk to Pieter Jelle Visser from Maastricht University and VU University medical Center Amsterdam. He is a clinical epidemiologist […]

HARMONY: 6 Important questions about Big Data in Health

Big Data has been attributed as having “transformative potential” in healthcare systems, with benefits across the entire pathway of care […]

Read the interview with HARMONY Partners Jan Geissler, EUPATI/Leukanet and Matthias Gottwald, Bayer about the empowerment of patients

IMI, the Innovative Medicines Initiative, interviewed the project coordinators of EUPATI: Game-changer in the empowerment of patients’. read more

HARMONY: Listen to: Elvira Mora-Castera, HARMONY Partner, HULAFE

@HARMONY Talks: Partners, Work Package Leaders and Leaders of the HM Disease Groups are sharing their views and experiences. read […]

How to Use Cardiovascular Data to Develop an Open Access Informatics Platform? – An interview with Richard Dobson and James Teo

BigData&Heart: Richard Dobson, Professor in Medical Informatics and WP3 co-lead BigData@Heart, University College London and James Teo, Consultant Neurologist, King’s College Hospital […]

ROADMAP: Sign up for the IMI-EMIF symposium on April 18th in Brussels

  IMI-EMIF would like to invite you to its public symposium: ‘Liberating Evidence from European Health Data – the Achievements and Challenges […]

ROADMAP workshop Modelling the economic value of Alzheimer’s disease interventions: How far have we come, and what next?

On Wednesday 14th February 2018 the Health Economics team from Work Package 5 convened a workshop in Paris to coincide […]

BD4BO Newsletter

Our latest newsletter is out now and you can read it by clicking this post.

HARMONY: Listen to: Michel van Speybroeck, JPNV-JANSSEN, HARMONY Partner, WP4 Leader, about the data platform

@HARMONY Talks: Partners, Work Package Leaders and Leaders of the HM Disease Groups are sharing their views and experiences. read […]

ROADMAP updates on recent and ongoing activities

There is a lot happening across the ROADMAP project and this article was drafted in collaboration with all ROADMAP Work […]

DATA IN QUESTION – survey on ethical, legal and societal challenges in biobank-based research – YOUR PARTICIPATION IS NEEDED

  The survey consists of 25 questions on some of the challenges of obtaining and sharing biological samples and data […]

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